Day -4
Well, we had to go back to the clinic again this morning for another round of steroids, Dr. Ruiz came to check on Ronnie and he said he was having a full blown MS attack. He has had attacks before but this one was the worst I have ever seen.
His brain and his body were not connecting. This was brought on by the chemo and the shots he gets every day. I won't sugar coat how I was feeling. It was very upsetting to find him a couple times on the floor as a result of thinking he could go to the bathroom when I wasn't in the room. It's not easy trying to help a 170 lb dead weight person whose legs wouldn't co-operate get back up on the bed. A few tears were shed! He was a bit better after the first steroids and we are hopeful tomorrow will even be better. We know this is only temporary but scary all the same.
I asked Dr. Ruiz about Ronnie's MS being active with the attack and could that mean he might see better results because of it. He said active MS does seem to show better results so far, so we are very hopeful this will be the case. Considering what he has been through so far, he certainly deserves to have a great outcome.
His voice is squeakier and lower than it has ever been (if you can believe that), again caused by the attack. The attacks are the things people never see. They only see bubbly, outgoing Ronnie, telling him how great he looks. They don't see the bowel, the bladder, the fatigue, or the frustration that goes along with it.
Tomorrow is an early morning, we have to be up and out by 7:30 to go to the hospital to have his PICC line put in. This is used to harvest the stem cells and then infuse another round of Chemotherapy. We have been told to prepare for a long 12 hour day.
Sometimes the smallest step in the right direction, ends up being the biggest step of your life.
Tip toe if you must, but take the step!
We are following you on your blog and praying for you. We knew it will be a battle, but one never know the true battle until you face it, hour by hour, day by day.
We are holding our breath as we read on your blog....all we can do is to pray for your courage, strength, loving support for every step you take by two of you.
Your suffering has apurpose.....huge return at the end. You are a half way done in this marathon. We are there for you along the way in our prayers and at the finishing line.
You are fighters, amazing fighters!
Go Ronnie Go!!!!
Go Susie Go!!!!
Love,
Meeae, Wayne, Eli, Katrina and Brett